@SMAEurope1

SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.

Support Us

Support us
Support us

Events

5th International Scientific Congress on SMA – 11th to 14th March 2026 | Budapest, Hungary
5th International Scientific Congress on SMA – 11th to 14th March 2026 | Budapest, Hungary

Our Initiatives

SMA Europe | Rolling Story of SMA | Patient Advocacy
SMA Europe | Rolling Story of SMA | Patient Advocacy
SMA Europe | Clinical Trials Finder
SMA Europe | Clinical Trials Finder
SMA Europe | Our Call for Research Projects | SMA Innovation
SMA Europe | Our Call for Research Projects | SMA Innovation
Join SMA Europe youth group on website
Join SMA Europe youth group on website
OdySMA | Home
OdySMA | Home
SMA Europe | SMAcademy
SMA Europe | SMAcademy
NBS Alliance | Home
NBS Alliance | Home

SMA Awareness Campaigns

"Connecting the Dots"
"Connecting the Dots"
"One Community. Shared Dreams" documentary
"One Community. Shared Dreams" documentary

Community Updates

SMA Europe | Community Update: FDA decision on the approval of Scholar Rock's apitegromab
SMA Europe | Community Update: FDA decision on the approval of Scholar Rock's apitegromab
Novartis receives FDA approval for Itvisma®, the only gene replacement therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA) | Novartis
Novartis receives FDA approval for Itvisma®, the only gene replacement therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA) | Novartis
A.24 Risdiplam - spinal muscular atrophy
A.24 Risdiplam - spinal muscular atrophy
SMA Europe | Community Update: FDA decision on the high-dose regimen of nusinersen in the treatment of SMA.
SMA Europe | Community Update: FDA decision on the high-dose regimen of nusinersen in the treatment of SMA.

Publications & Media Outreach

The SMA Europe Call for Research Proposals
The SMA Europe Call for Research Proposals
EUPESMA Survey on SMA and Clinical Trials
EUPESMA Survey on SMA and Clinical Trials
5th International Scientific Congress on Spinal Muscular Atrophy (SMA) 5th International Scientific Congress on Spinal Muscular Atrophy (SMA)
5th International Scientific Congress on Spinal Muscular Atrophy (SMA) 5th International Scientific Congress on Spinal Muscular Atrophy (SMA)
SMA Europe online tool helps patients find clinical trials
SMA Europe online tool helps patients find clinical trials
Clinical Trials Finder: Explore Global SMA Trials Clinical Trials Finder: Explore Global SMA Trials
Clinical Trials Finder: Explore Global SMA Trials Clinical Trials Finder: Explore Global SMA Trials
SMA awareness campaign aims to connect research, patient needs
SMA awareness campaign aims to connect research, patient needs
Accessibility Guidebook, Budapest
Accessibility Guidebook, Budapest
Rare Revolution Magazine: Beyond the breakthroughs
Rare Revolution Magazine: Beyond the breakthroughs
SMA Europe Annual Report - 2024
SMA Europe Annual Report - 2024
Navigating Patient-Centric Innovation: One Company’s Journey with the SMA Community
Navigating Patient-Centric Innovation: One Company’s Journey with the SMA Community
SMA Europe announces the awardees and projects shortlisted through its call for research no.12
SMA Europe announces the awardees and projects shortlisted through its call for research no.12
SMA Europe provides funding for five new SMA research projects
SMA Europe provides funding for five new SMA research projects
Spinal cord stimulation: A new perspective for SMA research
Spinal cord stimulation: A new perspective for SMA research
Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end
Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end
SMA Europe documentary aims to raise awareness on research
SMA Europe documentary aims to raise awareness on research
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy - Future Media News
EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy - Future Media News

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