ARRE Foundation
Improving life for those with ASXL syndromes through research and education
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Top news and updates
SSA adds Bainbridge-Ropers Syndrome to Compassionate Allowances list
SSA adds Bainbridge-Ropers Syndrome to Compassionate Allowances list
ARRE Foundation hires David Bettoun, PhD as first Chief Scientific Officer
ARRE Foundation hires David Bettoun, PhD as first Chief Scientific Officer
ASXL Family Conference
Watch conference recordings
Watch conference recordings
Participate in research
Research studies
Research studies
Free genetic testing
Free genetic testing
Family resources
Newly diagnosed resources
Newly diagnosed resources
ASXL Resource Library
ASXL Resource Library
Virtual events & webinars
Virtual events & webinars
ASXL Care Directory
ASXL Care Directory
ASXL Clinics
ASXL Clinics
Newsletter sign up
Newsletter sign up
Raise awareness and funds
Family Feature submission
Family Feature submission
Tell us about your loved one to be featured in our ongoing campaign to highlight individuals with ASXL-related disorders! Submissions take 3-5 minutes to complete, including several brief prompts about your loved ones joys, challenges, and pride and a photo upload.
Volunteer
Volunteer
Awareness Days
Awareness Days
Donate
Donate
Make a monthly or one-time donation to the ARRE Foundation by credit card, PayPal, or Venmo. Support the ASXL Community by making a donation.
Shop awareness gear
Shop awareness gear
Referral code: 15% of your BILLY Footwear purchase supports us
Referral code: 15% of your BILLY Footwear purchase supports us
BILLY Footwear creates shoes with zippers designed to be fashionable and functional, revolutionizing how shoes are put on and taken off. Incorporating universal design, BILLY shoes embrace inclusion. No more velcro. No more stuffing your feet into shoes. Step in unobstructed with our drop-in solution and zip.
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