support

Support for children in Huntington’s Disease affected families needs more focus worldwide

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At the start of this week I spent a happy day with farm friends

I was saddened to learn about the emotional deprivation experienced and unserviced

UK Clinical Excellence and HD Charities do not explicity highlight this need and Regional Community Paediatrics & Child Welfare do not shine as aware innovative effective leaders

Norway is unqique & Kjoelaas et al 2022 still give the best map to urgently mitigate emotional morbidity