Arman Mus.·Sep 30Why Does My Child Trip So Much? A Parent’s Guide to Recognizing Charcot-Marie-Tooth NeuropathyIntroduction: When “Clumsiness” Isn’t Just a Phase
Gwen Wren·Jun 21, 2024I’m reaching out for your travel advice…Where the scooter meets the pavementA response icon1A response icon1
Teresa Burgess RN, BSN, MS·Jan 19, 2024Chances Are You’ve Never Heard of Charcot-Marie-Tooth DiseaseDon’t feel bad. I’m a nurse, and I knew nothing about the disease until after a diagnosis with it in my late 50s. In my experience, most…A response icon1A response icon1
Clarissa Lesky·May 23, 2023Let Me Introduce MyselfThere is not a single person on this planet that has got away with never enduring hardship. Life punches you in the face in a multitude of…
Keenon Werling·Aug 24, 2022The problem with exoskeletons: “The Three Legged Race” (Part 1 of 3 on Exos)Hello! I’m Keenon, and it’s nice to meet you :) This is part 1 of a 3 part series on my exoskeleton research in my PhD at Stanford.
George H. Simpson·Jul 26, 2022About Being the Father of a Child with Charcot-Marie-ToothBeing the father of a child with CMT can be daunting especially since 1) you feel life-long guilt for having passed on the debilitating…
Suzanne Rood·Jul 9, 2019Disabled GardeningWhen I was writing my book three years ago, I could still make it out to the garden by myself. I could walk outside with my cane, carrying…
Suzanne Rood·Jun 4, 2019I’m TattlingThe knees of my jeans are caked in mud. There might even be mud in my hair where I’ve reached up to tuck it behind my ear. It’s under my…
Suzanne Rood·Apr 22, 2019Do you fold your napkin?It was the only way into the restaurant that I could see. Five steps up. Five beautiful, grey stone steps bordered by well-manicured yews…
