InRare Voices | The KBG FoundationbyAnnette Maughan·Nov 28, 2025How to Be Heard in a System That Wasn’t Built for Rare Disease FamiliesBy a Parent Who’s Walked This Road
InRare Voices | The KBG FoundationbyKBG Foundation·Nov 12, 2025💜 Stories of Strength | Chelsea’s Story“Sometimes you take it one day at a time… other times, one hour at a time.”
InRare Voices | The KBG FoundationbyKBG Foundation·Nov 12, 2025💜 Stories of Strength | Marion’s Story“If you’re not taking care of yourself, how can you take care of someone else?”
InRare Voices | The KBG FoundationbyAnnette Maughan·Nov 7, 2025Faith in the Waiting: Finding Strength When Answers Don’t ComeAnnette Maughan is the CEO and Co-Founder of the KBG Foundation, a US-based nonprofit dedicated to supporting families affected by KBG…
