B. Scott Perrin, Jr.·Jul 24One Parent’s Prospective on Exercise During the Duchenne Honeymoon YearsThe following are the notes from my panel discussion at the 2026 Parent Project Muscular Dystrophy Annual Meeting regarding Exercise and…
InA Seat at the TablebyJ Davis Mallory·May 28Four Hospitals, One Year, and Everything Nobody Tells You About Being a Patient”Somebody told me that my experiences from the hospital may be helpful, so I wanted to share some things that I have learned. I stayed at…
The Disability Medium·Feb 3What Her Body Didn’t Allow, Her Mind Tried to Carry AloneNaina loved holding her baby.
Despina Karras·Nov 16, 2025IAFF President Attempts to Address MDA Payment Scandal, But Creates More QuestionsThe Muscular Dystrophy Association always liked to share positive news before big fundraising periods, and since we’re close to…A response icon1
Rebelo_MariaInês·Sep 23, 2025The young woman with dystrophy. The unforgiving gaze. Everything at the dinner table.A few kilometres from my house, there is a restaurant serving traditional Portuguese cuisine.
