G. Scatterlight·Feb 28Its Rare Disease Day.Come on you didn’t expect a blogger like me to not post today, did you?
InNew Writers Welcomebydan brotzel·May 10, 2025‘My Child’s Condition is a Puzzle of Unknown Pieces’Children like Aeron have diseases so rare they sometimes don’t even have a name — and parents have to get together to work on the etiology…A response icon2
Lucy Holland·Feb 25, 2025How Lab-Grown Intestines Are Changing Rare Disease ResearchScientists grow mini-gut models from patients to study Hirschsprung’s disease, offering new insights and hope for personalised treatment.
WeTrials Inc.·Feb 29, 2024Rare Disease Day: A Global Movement for ChangeEvery year, on the last day of February (29th in leap years), the world comes together to recognize Rare Disease Day. This international…
Andy Hunt·Feb 29, 2024Shots Anyone?Sometimes you have to do something that makes a child cry even though it is good for them. That’s why I make Ella watch Dallas Cowboys’…