Shahnaz Hameed·Sep 19Microaggressions and Saviour Syndrome — Two Sides of the Same CoinI was diagnosed with Retinitis Pigmentosa (RP) 16 years ago, when I was 24 years old. RP is a progressive, degenerative condition, which…
RP Gene Research Foundation·Jul 11, 2025From Tears to Triumph: Dealing with Retinitis PigmentosaEmbracing Empowerment After a Rare Disease Diagnosis
RP Gene Research Foundation·Feb 19, 2025PBS Segment About RP and My FamilyI write a lot about Retinitis Pigmentosa to try and raise awareness for the disease that afflicts both of my children. As a family, it’s…
RP Gene Research Foundation·Jan 17, 2025I Have Never Cried So MuchFrom Tears to Hope: Finding Strength Through the RP Gene Research Foundation
Mo' Lanee Sibyl, DPh, PhD·Nov 11, 2024Thriving with Retinitis Pigmentosa도전과 성장|The One with Sola Adewumi — A Journey of Resilience & Breaking Generational Patterns: Episode 23 (2024)