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  • 2 weeks ago

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00:00I wasn't just in pain, I was collapsing.
00:02And you know what they told me?
00:03To stop being dramatic.
00:04I went to the hospital yesterday
00:05because I was experiencing extreme pain.
00:08It was that bad.
00:09I was having seizures and blackout.
00:11I was having a seizure.
00:12A nurse saw me.
00:13I had five or six within five minutes.
00:15Didn't even come to help.
00:16And when it came to her actually comment,
00:18she turned around and said,
00:19oh, that's not a seizure.
00:21That's just her twitching.
00:22Told them I was autistic
00:23and I said that you were dismissing how I was feeling.
00:26They're like, we're not dismissing.
00:27She couldn't believe what she was hearing,
00:28but it was about to get even worse.
00:31Even with this,
00:32they were trying to make me sign someone.
00:33I've literally had a seizure about five,
00:35I had three seizures about five minutes ago.
00:36How am I going to sign a,
00:37basically a legal document
00:39when my mind's not all here?
00:40Are you done with this?
00:42I don't feel safe enough to sign it
00:44because it's saying against medical advice.
00:46The doctor said she was going to be discharged anyway.
00:49I don't feel safe.
00:50The doctors were about to make a decision
00:51that would put her life in danger.
00:53They made me in front of a buried patient.
00:55I have a chronic illness.
00:57I cannot be near infectious patients.
01:00They made me feel like I was the
01:01for not wanting to catch an infection.
01:04They left me seasoned,
01:05exposed,
01:06in the middle for everyone to see me.
01:08Do you know how that,
01:09how much that hurt that betrayal?
01:11They discharged me with zero answers
01:14and refused the scan that I was due.
01:16They left her with no choice
01:17but to expose their terrible practices.
01:20If you work in the healthcare,
01:21you should be f***ing caring,
01:22not calling people brat.
01:23You shouldn't even be in the healthcare sector.
01:25You shouldn't even be in public services
01:27if that's your mindset.
01:28People are d***ing from this negligence
01:30and yet people don't seem to f***ing care.
01:32I do.
01:32I'm not going to sit here
01:33and allow this to keep f***ing happening.
01:35No, I'm going to be using my voice,
01:37my platform to demand systemic change.
01:40Just because you're okay
01:41the way that the system is
01:43doesn't mean the rest of us are.
01:44Living with chronic illness is exhausting
01:47and the last thing you need
01:48is doctors who don't care about you.
01:50I live with FND, endometriosis,
01:53ankylosing spondylitis,
01:55autism and ADHD.
01:57They're hard to live with.
01:58I'll be for real.
01:59Like the seizures are just horrible.
02:01It's hard enough living with one chronic illness, yeah,
02:03but it's even harder when you have multiple
02:05and people just think,
02:06well, you're fine, you look fine.
02:07And it's just like,
02:08do you know how long it took me
02:09to look this fine today?
02:10You know what I mean?
02:11Like it's not so easy.
02:13It's so tiring and draining
02:15having to deal with it.
02:17And yet no one ever f***ing cares.
02:19The healthcare system doesn't care.
02:21If you've not got epilepsy, bro,
02:22they don't care.
02:23Unfortunately, some of her viewers
02:24decided to send her hate online.
02:27Some of these people in the comments
02:28who are staff who claimed it's
02:30I'm a drama queen.
02:31All I was wanting was to be listened to,
02:33to be heard,
02:34to not be dismissed
02:35and to be treated with the respect and dignity
02:38that I am entitled to.
02:40That is the bare minimum.
02:41And them staff failed to deliver it.
02:43When there's NHS staff,
02:45online calling sick patients,
02:48a brat and manipulative,
02:50it proves my exact point.
02:52If you're tired of demanding patients
02:54and manipulation,
02:56then quit.
02:57Us patients are also tired
02:58of being abused by staff too.
03:00I was fighting for my safety.
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